Accidents happen; you just never know when. Living with a bleeding disorder requires some extra preparation to ensure you'll be ready to tackle emergencies whenever they may pop up.1
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First and foremost, try to remain calm, move quickly and follow these 3 steps:
With a bleeding disorder, trips to the Emergency Room may be necessary. ER staff may not be as familiar with bleeding disorders as you are, so by preparing your family and your ER in advance, you can make ER visits less stressful for everyone.
In an emergency, you can't always have a choice of which ER you go to in the moment. However, preparing ER staff in advance can make a big difference in the emergency treatment you receive. When vetting an ER, follow these suggestions2:
Find the ER most familiar with treating bleeding disorders (if there is more than one nearby)
Ask your healthcare provider which facility is commonly used by people with a bleeding disorder
Request additional materials for managing a bleeding disorder and emergencies from your HTC
Keep 7 extra doses of factor treatment at home, work, or with you in case you must evacuate due to a natural disaster (hurricane, blizzard, forest fire, etc.), where your treatment supply may be limited for a while.4
I always say to emergency room staff, listen to the patient, because they often know more about their disease state than the people treating them.
-Lisa, Takeda COMMUNITY education specialist
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