Every case of a bleeding disorder with inhibitors is complex, so you need a comprehensive care plan and a team of specialized healthcare providers suited to your specific needs.1-3
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Yes. Hemophilia treatment centers (HTCs) help bleeding disorder patients and families manage life with a bleeding disorder, including those with inhibitors. HTCs provide comprehensive care, including medical care, education, and support services.1,2
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In comprehensive care, a patient is first assigned a team, which varies based on the individual’s needs and the structure of that particular HTC.3 Your team of healthcare providers typically includes hematologists, nurses, social workers, physical therapists, psychologists, and, for female patients, a gynecologist. Some may also have dentists, genetic counselors, and orthopedists.1,2
It’s very important that patients being treated for a bleeding disorder are involved in every aspect of their care. The team takes into account each individual’s needs and lifestyle when planning treatment.1
Having a conversation with your doctor can seem overwhelming, but with the inhibitors discussion guide, you’ll have the tools you need for a constructive conversation with your doctor.
When ready to start, this guide will cover factor basics, venous access options, home infusion to self-infusion, self-infusion steps, ports, and support.
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